EMC3

Gosh, I am so bad at updating Zane’s website. Right now, I am caught up in a cyclone of searching for a literary agent or a small publisher for my writing. Marketing is more work than the writing itself.

Zane has fully recovered from his UTI. Today, he returns to the pediatrician for a follow up. She may decide to have Zane undergo another VCUG. In layman’s terms, it is an unpleasant x-ray exam that requires the use of a catheter to check for kidney reflux. Again. I say again because this will be Zane’s second one. Poor kiddo. He is such a trooper to put up with all of these invasive tests.

On a happier note, we are in the process of putting a new communication system into place for Zane. Over the past three months, I attended EMC³ training with Zane’s therapists. From the training, we have learned how to assess his means of communication and are developing a symbol system that he can access to better communicate with those around him. We are very much in the preliminary stages, but—due to his superior intellectual abilities—we believe he will catch on quickly. If anyone is interested in learning more, you can visit http://www.everymovecounts.net/. Jane Korsten is an amazing (let me emphasize that—AMAZING) woman! The children are first and foremost with her, and she knows her stuff. The program is not something a parent can do in isolation. It requires support of the entire team. Nonetheless, I highly recommend it.

Okay, I’m off to edit my manuscript. I promise to update again soon.

Susan