“Every day is a journey, and the journey itself is home.”

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Wednesday, January 20, 2010

January

It’s been awhile since the last update. Everyone is back to being healthy. The nebulizer is packed away, as is the saline solution for nasal irrigation. Zane appreciates their disappearance, I am sure.

Home health services are well under way for Zane, which provide respite care for the family, as well. The CNA who cares for Zane is great with him. She devotes all of the time she is here to his care and therapies, so I know her presence will be beneficial to him. She will come for a full day this weekend, allowing us to take Justin skiing for the first time together. In the past, we have had to take him separately while one of us stays home to care for Zane. Fortunately, we received over a foot of snow recently with more to come this week.

Zane has also transitioned well from early intervention to San Juan BOCES—the organization that works with the school system to implement IDEA and provide Zane with the therapies he needs. All of his new therapists are terrific. Plus, he still privately receives an additional day of physical therapy from his early intervention therapist. Zane will start preschool next school year (August). We have been told to expect great advances once he is around kids who can model behaviors for him. Justin is helpful in that regard, but having a whole room full of kids will be even better.

Thanks for checking in on our little guy.

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About Me

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Susan is a YA and Adult contemporary novelist, as well as an advocate for social change. Her essays have been published both nationally and regionally, including a brief stint in The Daily Beast. She lives in the Southwest with her family.