It’s been awhile since the last update. Everyone is back to being healthy. The nebulizer is packed away, as is the saline solution for nasal irrigation. Zane appreciates their disappearance, I am sure.
Home health services are well under way for Zane, which provide respite care for the family, as well. The CNA who cares for Zane is great with him. She devotes all of the time she is here to his care and therapies, so I know her presence will be beneficial to him. She will come for a full day this weekend, allowing us to take Justin skiing for the first time together. In the past, we have had to take him separately while one of us stays home to care for Zane. Fortunately, we received over a foot of snow recently with more to come this week.
Zane has also transitioned well from early intervention to San Juan BOCES—the organization that works with the school system to implement IDEA and provide Zane with the therapies he needs. All of his new therapists are terrific. Plus, he still privately receives an additional day of physical therapy from his early intervention therapist. Zane will start preschool next school year (August). We have been told to expect great advances once he is around kids who can model behaviors for him. Justin is helpful in that regard, but having a whole room full of kids will be even better.
Thanks for checking in on our little guy.
Christmas 2025
8 months ago
I had a little brother with trisomy 18 so when a friend mentioned Zane I was really excited to hear of such a wonderful story! Reading your updates is always so encouraging and I'm glad he's doing well! God bless!
ReplyDeleteThank you so much, Janine. That means so much to me. I would love to hear about your little brother sometime.
ReplyDeleteSusan
Thanks for commenting on my blog and sharing your with me. When I was 6 months pregnant with the girls they told us Emily would not survive long once she was born. Now she's 8 and is such a joy to have in our family. She teaches me so much every day.
ReplyDeleteWe are currently working on transitioning her to Bayfield Elementary. The program at Riverview has been great for her, but we really want her to be a part of the Bayfield community and closer to her siblings. We'll see how it all goes.
It would be great connect sometime. It helps to talk to other families and realize someone else understands the journey we're on. Thanks again, Susan