“Every day is a journey, and the journey itself is home.”

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Wednesday, August 8, 2012

Back to Where We Started


Zane’s amazing pediatrician was able to get us an appointment with a local ophthalmologist today. Come to find out, he knows Zane’s surgeon, having done part of his residency with him. Zane’s Denver surgeon also performed surgery on the local ophthalmologist two years ago, as well. So…today’s doctor is quite familiar with the eye surgeon in Denver.

The good news is that we don’t have to go to Denver until Zane’s follow-up appointment in September.

The bad news (and it’s bad) is that the ophthalmologist is pretty sure Zane released his sutures last week. Unfortunately, the only way to correct that is by having him undergo the same surgery again. He is positive Dr. D. (the surgeon) will recommend another operation to correct what happened. Of course, we won’t know for sure until September, but the doctor today said that the droop in Zane’s eye will not improve with time. The swelling is almost completely gone, so the eye likely will not lift any higher than it currently is. And, to me, it looks like it did prior to the surgery—as though no ptosis fix happened at all.

We’ll have to consult with Zane’s surgeon next month, though, to be sure. There are a few problems:

1) We’re not sure if Zane’s insurance will cover another surgery.

2) We’ll now be traveling to Denver in the precarious months of fall and winter, which we tried oh-so hard to avoid.

3) Zane has to undergo anesthesia and surgery again, as well as the same recovery that he just went through (eye shield, arm immobilizers, eye ointment, pain).

We’re not happy. At all. Right now, the whole trip to Denver last month was (most likely) a total waste.

8 comments:

  1. Susan, how frustrating. I don't understand how they're not responsible for doing the surgery again at their cost. Isn't there some guarantee? I'm sorry.

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  2. This is not good news. Thinking about Zaner.

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  3. Oh man. I am so, so sorry Susan. I can only imagine what all this has been like for you and for Zane. Poor dude. And poor mom and dad! ((hugs))

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  4. I was very sorry to read this. I was hopeful. Very glad you were able to meet with someone closer to help you out. Hugs to you all.

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  5. I'm so sorry to read this. Hugs to all of you.

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  6. Hi Susan, I just wanted to let you know that my wife, Michelle, and I have been following Zane for several months. Our daughter Mia was also diagnosed with Trisomy 18 following birth. Zane is very inspiring and, although he has faced many challenges, it's wonderful to see how well he has done. Similarly, we were given a very grim diagnoses, but Mia has persevered. She is now 4 months old, but in the beginning we were not sure if she would make it past 2 weeks. We also have a blog tracking her progress..

    http://miascherer.blogspot.com/

    Thank you for sharing Zane's story.

    Nick Scherer

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About Me

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Susan is a YA and Adult contemporary novelist, as well as an advocate for social change. Her essays have been published both nationally and regionally, including a brief stint in The Daily Beast. She lives in the Southwest with her family.