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Just when you think things are finally calming down and
finding equilibrium, something else happens. Zane is having seizures. We’d
noticed strange behaviors with him over the past week or so—ones we hadn’t seen
before—but we didn’t think too much of it. The other night, I even half-joked
to Jeff that I thought Zane might be experiencing seizures. Because that’s just
what we need: another issue to deal with, as if we don’t have enough of them
already. Then, yesterday, I took Zane to his osteopath. I didn’t say a word
about possible seizure activity. But one of the first things the doctor asked
was…
"Is Zane having seizures?”
If I had been a cartoon character, I would have had to pick
up my fallen jaw from the floor. “Why do you ask that?” I said.
“Because his eyes look different.”
Then I explained that it had occurred to me that he might be
having them.
So last night, I took Zane’s big brother to basketball
practice. When we arrived back at home, Jeff had observed and recorded what
clearly appeared to be seizure activity in Zane.
When you have a child with significant medical involvement,
you learn quickly to search for new things in his environment that may be the
source of the problem. I went to the side effects list for his erythromycin. He
started it nine days ago. That matches the time when the seizure activity
seemed to begin. Sure enough, it is listed as a possible side effect. I called
Zane’s GI doc this morning. Of course, he said to take him off the medication
immediately (which we already had). If this is indeed a side effect of the
medicine, Zane should be back to normal by Sunday. If not…well, it looks like
we’ll be traveling to Denver
Fingers and toes crossed, positive thoughts put out there,
that it’s the medication and not something else.
Oh, poor Zane!! Glad you caught it soon and were able to find out the reason. Seizures are so scary. Christopher had a grand mal seizure at the age of 9, out of the blue, and I had complete PTSD (fainted!) because of NICU memories. After years of having epilepsy (treated with anti-seizure meds), he's grown out of it. But I know lots of people are not so lucky...
ReplyDeleteMarie, Zane had seizures when he was an infant, so we kind of figured that's what they were. They used to be so much worse than these. He had grand mal seizures back then, too, and would take hours to recover.
DeleteEverything crossed that it's just the medicine.
ReplyDeleteT18 kids are predisposed to seizures, so I was just waiting for it to happen in Vera. Yes, we all don't like it, but the important thing is to find out what type of seizure Zane has, so need emergency response, some don't.
ReplyDeleteYes, that is true. Zane used to have seizures many years ago, so we are all-too familiar with them. But in this case, we believe it is the medicine. It is a listed side effect. I certainly hope Vera never experiences them. They certainly are not pleasant.
Deleteoh those darn seizures---they were a big problem with my kids---and yes we once had a "seizure" med that increased one of our daughter's seizures---go figure--crazy stuff to deal with---my best wishes and prayers for you and zane<3
ReplyDeleteIt has to be the medicine.
ReplyDelete