“Every day is a journey, and the journey itself is home.”

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Thursday, January 9, 2014

Calgon, Take Me Away


It’s been a rough week. Since Sunday, Zane has been exhibiting repetitive behavior (something that happened earlier this year, but ultimately resolved itself). In a nutshell, he vocalizes, plays air piano with lots of jazzed up excitement, rolls his eyes back, and blinks. Repeat. All day long. Into the night. He doesn’t sleep much. Therefore, we don’t sleep much either.

He’s not himself. He doesn’t interact in his usual way—if he interacts at all. He’s too caught up in the pattern.

After another sleepless night last night, I called the neurologist today. The plan: observe him through the weekend. If the behavior continues, Zane will have to be admitted to the Epilepsy Monitoring Unit at the hospital for 2-5 days. This involves EEGs and video assessment. Fun.


I’m thinking this needs to resolve itself. Zane is way too booked to have to deal with a 2-5 day hospital stay. This month he has the dentist, the orthopedist (for a follow-up), the audiologist, and the cardiologist. We simply do not have time to squeeze in the PEMU.

2 comments:

  1. hi susan--thinking of you and all zane and your family goes through each precious day---hang in there :)

    ReplyDelete
  2. Susan, how's Zane now? Did you end up doing the hospital stay and EEG? Totally understand about being all booked up at the same period!

    ReplyDelete


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About Me

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Susan is a YA and Adult contemporary novelist, as well as an advocate for social change. Her essays have been published both nationally and regionally, including a brief stint in The Daily Beast. She lives in the Southwest with her family.