“Every day is a journey, and the journey itself is home.”

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Monday, April 25, 2011

Thank you to everyone who offered (and continues to offer) condolences to our family.

Jeff had called me on Friday morning, reporting that Zane had a fever. He has been sick all weekend and into today. It appears he has a stomach virus, which may last as long as 10 days. He's been cranky and lethargic; very un-Zane like.

We are missing Sara so very much that I wanted to share some additional pictures to celebrate her inner and outer beauty, and how deeply she will be missed.


Get well, Zane.
We love you, Sara.

Friday, April 22, 2011

Sad News

This past week, Zane's Aunt Sara died tragically. He and Sara had an amazing bond with one another. They often spent time with each other in the purist of peace and quiet. Seeing Zane and Sara together sincerely touched my heart. Not only was Sara an incredible aunt to Zane, but she treated Justin with equal love and attention. She will be missed beyond belief. Out hearts are completely shattered. Please say prayers for my brother, Steve (her husband), and for Sara's parents, Kim and Linda Collis.

Friday, April 15, 2011

Mr. Opinionated

Who says a person needs words to communicate?

I cannot believe how much Zane has matured over the past year. I attribute some of that to age and some to the fact that he’s almost through his first year of school. Being with his peers has helped him immensely. As part of his maturity, I have noticed Zane expressing his opinions more frequently. It used to be that I could do just about anything with him, and he would let me. Now I find him protesting more and more.

Example: Zane is a big teeth grinder (some of you may have read this post). To save his teeth and our ears, we often will pop a pacifier into his mouth. During dinner last night, the teeth grinding started up again. I lifted his passy to his mouth, and he distinctly pushed my hand away. I tried again, and he pushed at the pacifier. He clearly did not want it.

But he makes his opinion known all the time.

• He makes loud declarations if we leave him alone by himself in a room (usually during tube feedings, as it is not easy to move Zane and his whole set up every time we move from room to room).

• He clenches his teeth and shuts his mouth when he sees the toothbrush heading his way.

• He abruptly turns his face away when he doesn’t want a kiss.

• He straightens his legs and wiggles his body when he doesn’t want to be held.

• He throws/pushes toys he doesn’t want onto the floor.

I am so profoundly excited by the progress he has made. Sure, he’s still not walking or talking, but he IS making progress! And it is absolutely thrilling to me!

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About Me

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Susan is a YA and Adult contemporary novelist, as well as an advocate for social change. Her essays have been published both nationally and regionally, including a brief stint in The Daily Beast. She lives in the Southwest with her family.