Along for the Ride

All that worry and Zane has done remarkably well with his post-surgery recovery. Unfortunately, a nasty virus hitchhiked a ride home with Zane, and he passed it along to his brother. I will spare everyone the gruesome details that have occurred in our household over the past two nights. Needless to say, I am in dire need of some sleep, and midnight cleanup truly is not fun. This is the third trip to Denver where Zane picked up a stomach virus.

We still need to have some labs done to figure out what may be going on with Zane’s GI issues. The new formula seemed to make things worse, so I put Zane back on the soy. While he is still doing the whole gagging thing, he seems a little better again. We’ll see.

Now that the surgery is behind us and the illness is nearly out the door, we are hoping to recover some semblance of a schedule again.

We're Home

Yes! We’re home. Zane was discharged late yesterday afternoon after he proved (in true Zane superhero fashion) that he was emptying his bladder okay (check), that his pain was under control (check), and that he tolerated his feeds (check). We’ve managed to do pain management without narcotics, though we do have Tylenol with codeine on hand just in case. Zane was a real trooper on the ride back, as well.

We are so very grateful to the volunteers at the downtown Denver Ronald McDonald House. They were awesome! We also appreciate the doctors, nurses, and staff at Rocky Mountain Hospital for Children. They rock! Even though everyone made our experience easy and memorable, we are grateful to be home.

Morning Update

Zane had a good night last night. His oxygen saturation levels stayed in the upper 90s. The nurse alternated between an oral dose of Tylenol and IV pain medication. Zane did not need narcotics through the night. However--according to his anesthesiologist--Zane no longer has an issue with morphine or other narcotics. Back in 2007, he apparently experienced obstructive apnea from suppressed respiration after given morphine--something that is no longer an issue for him. Four years ago, he had episodes of central apnea, as well, which probably contributed to his desatting.

This morning the nurse pulled his catheter, and the doctor should be by the see him later this morning. I am incredibly impressed by Zane's urologist and with our experience at Rocky Mountain Hospital for Children. I am most impressed by our little guy who has been such an incredible trooper given everything he goes through.

Naturally, we are relieved that Zane no longer has to worry about airway obstruction during anesthesia, and we are so happy he has done so well through and after the surgery.

Thanks to everyone who offered words of encouragement and support here on the blog, on Facebook, and through phone calls & text messages.