We're Home

We are home! We’ve been home since Tuesday. However, I feel so depleted from the past month or so (in fact, from the entire year) that I needed some down time. Still do. But since so many of you follow Zane and worry about his well-being, I knew I needed to post an update.

 

First, may I say, the experts at Children’s are awesome! And Zane’s GI doc is one of the nicest physicians I have ever met!! The medical professionals there pulled everything together for us and explained what had been going on with Zane for the past three weeks. The bottom line is that Zane caught a virus that spiraled out of control, causing his UTI and all sorts of misery and discomfort. Unfortunately, his pediatrician had some of the separate parts of what he needed, but never came up with an answer or complete fix for his troubles. We’re glad we went to Denver. Not only did they tell us what had been going on with Zane, but they gave us a plan to help him now and if this ever happens again. They checked his gastrostomy tube for fit and removed some of his granulation tissue with silver nitrate. Plus, his nurses were phenomenal. I am so grateful to them all for helping out our little guy.

 

It wasn’t a whole lot of fun sleeping on the hospital couch in his room. But I learned my lesson not to leave him alone during hospital stays (i.e., his 2007 stay at Phoenix Children’s).

 

Anyway, Zane now has a new dietary and medicinal plan in place, and he is back to his happy self. He returned to school yesterday, and many of his classmates were happy to have him back. In fact one little girl who sat next to him in circle held his hand. It was absolutely precious. We’re thrilled to have the old Zane back.

 

Thanks to all of you for the positive thoughts and prayers.