Oh, The Medical Issues You'll Have

This week has not been easy. Oh sure, we’ve had harder weeks. But this one is not going down in history as a great one.  

Why? you may ask.  

1.      Zane has been retching and vomiting, but we didn’t get a new medicine until late today. The on-call physician prescribed a medication for Zane that is not considered safe for patients with seizures. I asked the nurse what they were thinking. Needless to say, she was dismissive of me, stating that the doctor was fully aware of Zane’s medical history. I truly doubt that, given the fact that they switched the med after I called this morning. I don’t understand why I have to double check the “work” of an MD. But…moving on.

2.      Zane’s seizure activity is increasing (unrelated to #1). Last night I observed a series of 37 myoclonic seizures over the span of roughly seven minutes. Looks like a call to the neurologist is on the horizon, which can only mean one thing: a medication dosage increase.

3.      I received a call last night from the pediatrician. This is the first time ever that something not so good has appeared on a screening ultrasound. It looks as though Zane has a dilated ureter. I googled it, and the solution is often ureter reimplantation surgery. Something he has already had. So…the ultrasound has been sent to his urologist in Denver for evaluation. I don’t expect good things to come from his call.  

I am fully anticipating a second Denver trip in the near future for urology and GI-related issues. No crystal ball needed.

 

So since this post had a negative tone, it's best to end on a positive note...

 

I so love my sweet boy's smile.