Our son was diagnosed with Trisomy 18 five days after birth. We were told he probably would live for two months--no more. He has managed to defy the odds placed against him. Zane is now ten.
“Every day is a journey, and the journey itself is home.”
♥♥♥
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Trisomy 18
Trisomy 18 is a chromosomal condition that occurs in 1 in 7000 births. It typically proves fatal for children within the first year of life. Fewer than 10% live to celebrate their first birthdays.
When Zane was born he only weighed 3 lbs, 14 ounces at full term. In fact, he was born on his due date. This is one of my favorite pictures of him from the NICU.
Susan is a YA and Adult contemporary novelist, as well as an advocate for social change. Her essays have been published both nationally and regionally, including a brief stint in The Daily Beast. She lives in the Southwest with her family.
Oh wow. What an inspirational little man.
ReplyDeleteHis smile is beautiful!! What an amazing kid you are blessed with!! He's a doll, thank you for sharing his and your journey...
ReplyDeletePrecious photo!
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